High Functioning Autism…My *CAL, and what I see!

Hello my lovely bloggy friends,

I’m going to go through a day in the life of *CAL from an Aspie Mom perspective.

I’ll tell you about today it’s pretty average as it goes, I don’t usually post about day to day stuff but I thought I would today.

Today was *CAL’s first day back to school

After the 4 days weekend for the Royal wedding. As predicted she was completely shutdown this morning. This means everything I ask her to do takes forever or doesn’t get done AT ALL.

Getting her out of bed, washed, dressed and down stairs…If I leave her to do it herself. Just won’t happen. I have to stand and prompt everything she needs to do, one thing at a time. Or on really bad days do it for her.

I always plan a music lesson for *CAL on the first day back of each week. I find that this gives her a focus to get through the first day, it starts to get easier as the week goes on and then we get the weekend again.

Breakfast…Frosties, she eats half a bowl full…she always seems to only eat half. I tried once only giving her half the amount, she ended up only eating a quarter. We have dogs, NO food gets wasted here.

We actually managed to get to school on time today….Woohoo!!!

That NEVER happens on the first day of a week. But it did today, yes I pat myself on the back for that. 🙂 Giggle.

I’m a dinner lady at *CAL’s school.

By dinner time she was switched on again, she goes to Nurture Group and has 15 minutes out in the playground each day.

She came down to my playground, I’m on huff and puff this week. Lots of bouncy hoppers, skipping ropes, bats and balls, basket ball, mini golf and just LOADS of FUN actually.

Now that our weather is nice the kids are all enjoying playing on the grass. *CAL has 2 friends they are boys in her class and she plays quite happily with them for this short time. Any longer she can become a little lost and confused, then doesn’t cope well later.

After school I was in the playground,

A child in *CAL’s class came running up to me all very excited. She told me that there is going to be a competition in school to design a character for a computer programme the school uses. *CAL is EXTREMELY good at art. This little girl said to me *CAL’s AMAZING, she can draw anything I bet she will win. I felt so very pleased about this until I found out that the winner gets to go on a trip and take 5 friends with them.

I suddenly thought about all of *CAL’s sensory issues

How overwhelmed she gets and also she only has 2 friends. All my fears jumped in and attacked my thoughts, I started looping on the thought of her getting used for her talent. Thinking she has suddenly got new friends as the kids are telling her how brilliant her drawings are.

I’m her Mom, but I’m also an Aspie and I know how much it hurt to find out that someone, you think is your friend, was only using you to get what they want. Not being able to see this and then feeling the hurt when you suddenly get dumped.

But this is my experience and I can’t allow myself to project that onto my daughter. She is NOT me she is *CAL she has different ways of coping and understanding. As her Mom I will help her to understand and discover her own way.

Fast forward a bit…*CAL’s Piano lesson.

*CAL has a key board at home, I would SO love to get her a piano. We simply can’t afford it yet.

But each week she gets to lose herself on a Baby Grand.

I watch the joy on my daughter face as she feels the music she plays.

Today she started to use the pedals….OMGoodness, you should have seen her.

The excitement of being able to control the length of the notes and feel her way in her music.

Her face lit up and she just started giggling and happy-dancing on the piano stool.

It was just so beautiful to watch.

She was so excited and totally absorbed in the sounds she could make using the pedals and playing her scales and chords.

Her tunes that she has worked out from all her video games. Suddenly came alive to her.

*Elaine, *CAL’s music teacher looked at me with tears in her eyes.

She said, “We’ve got to get her a piano!”

Then she turned to *CAL and lovingly said,

“If I had enough money *CAL I’d buy you a piano just like mine.”

I REALLY don’t know how I held it together because I know that *Elaine ABSOLUTELY meant what she said to my little girl.

So now it’s *CAL’s bedtime…and guess what?

She is wide awake and totally switched on, she has done everything on her list to do and is reading a book to herself in bed.

Once she gets to sleep she usually sleeps well, not like me and *AJ who both get up at least once every night to empty our brains…not our bladders like most people.

So…tomorrow we start again.

I know one day she will do it ALL for herself, but until then I’m here to help her find her way.

17 thoughts on “High Functioning Autism…My *CAL, and what I see!

  1. Thanks for sharing the details of *Cal’s day. The truth of a life is always in the details.

    Remember I told you about Freecycle/Freegle? People give away pianos quite regularly. I suppose it’s a dying art.

    • Thanks for reminding me Tilly I will have go check it out.
      Her piano/violin teacher is also looking out for one for her.
      I SO need to get this room decorated before putting a piano in it.
      Love and hugs.
      Lisa. xx:)

    • Hello Heather my friend,
      Yep….first days back are always the same.
      I agree with you we are very blessed to have each other.
      Love and hugs.
      Lisa. xx 🙂

  2. Lisa,
    Your Cal reminds me so much of my daughter. I hope you are able to get her a piano one day as our girls really need their music.

    • Hi Chloe my friend,
      It was a WONDERFUL moment and I SO wished I would have thought to video it.
      I’m always taking photos and videos, this particular moment my brain switched off.
      It never usually does that, I must have been caught up in the emotion of it all.
      Love you loads.
      Lisa. xxx 🙂

  3. My anxiety level spiked when I read about the contest prize!
    A trip with a bunch of people would be sensory overload for me!

    But the music lesson has such a warm, peaceful feeling about it.
    And the music teacher really seems to appreciate *CAL’s gift in music.
    Your post left me feeling happy and blessed!
    Thanks for sharing your day.

    • Hello Bruce,
      You’re on the ball aren’t you! Yep this week *CAL has brought home Dr Who cards that a child keeps giving to her. A little curious to this, but trying to think the best.
      I’m glad my post left you feeling happy and blessed.
      Love and hugs.
      Lisa. xx 🙂

  4. I enjoyed this post Lisa. You are a lovely Mommy who struggles herself but I love the fact that you realise that your fears should not be transferred to CAL. I have never been a Mom but I can relate to the protection you want to give to loved ones, to protect them from being hurt. It’s a learning curve we all have to go through however. My philosophy is finding the right coping strategies to suit. Love you loads xxxx

  5. She sounds like such a delightful girl. 🙂

    In third grade, I got to choose one person to go with me on a reward dinner with the teacher and suddenly found myself the center of attention. I knew they really just wanted to go along and that none of them were true friends, so I just picked the one that had been the nicest to me all along.

    I wonder if CAL could be fewer than 5 if she wins and prefers a smaller group?? It would hardly be a reward if she is overwhelmed and has to take people who aren’t really her friends.

    • Thanks Aspergirl Maybe,
      I’ll definitely suggest this if she wins. She has 2 genuine friends, they stick with her, the teachers know this so I’ll point it out if I have to.
      Thanks for caring.
      Love and hugs.
      Lisa. xx 🙂

  6. “I have to stand and prompt everything she needs to do, one thing at a time. Or on really bad days do it for her.” We have lots of days like this at our house.

    It’s wonderful how you appreciate and nurture *CAL’s musical and artistic gifts, and it’s so nice she’s getting appreciation from others, as well.

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